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Archive for the ‘Advocating’ Category

As it became more apparent today that our surgical admission is turning into a much more open-ended one, I found myself with a new concern other than just my son’s recovery from his latest surgery. Will he contract another infection or other issue? This is always on my mind during any contact with medical staff, and let’s face it, the hospital is the worst place in the world for a sick person. Especially when that individual is immune compromised. Ironic isn’t is? That irony ranks right up there with getting rest in a hospital. As I once said about the hospital culture; Want rest or to be left alone and they come one by one, but need something and not a soul can be found. Back to the topic now. Hospital infections and more importantly how we as parents and caregivers can help minimize the exposure, at least to your precious one. This article is not meant to bash the healthcare staff of hospitals, but rather raise awareness to parents to help advocate and potentially reduce the spread of these infections[….]

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Past Few Days

It has been a very exhausting and stressful few days. I have been battling my son’s colorectal doctors to take a look at some odd and concerning lumps on his colostomy stoma. We have been playing the photo email game for several days. Why i do not know, but they are simply refusing to bring him in to look at him despite his bone marrow doctor requesting fervently. Late yesterday we finally received an email simply stating that it was nothing to be concerned with and will be dealt with during the colostomy closure in the future. That is it, no mention of what they are or that there is nothing to watch out for in the mean time. Just live with them for the next several months. Seeing how this opinion was arrived via photos only the fact that the doctor will not commit to what they are is a little concerning and creates doubt. If you can not identify these by name how can you be so certain there is no cause for concern? Some of my son’s other physicians agree with us on that point.  We will just have to be vigilant and watch for changes. I believe I have commented to this effect before, I wonder if other parents have the same difficulties with advocating?

Thanks for reading my point of view,

http://www.twitter.com/fatherpov

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Today was one of those days that are exhausting from start to finish. Speech theory, then occupational therapy, and a meeting with our medical supply company. This was intermingled with a slew of phone calls, both being made and received. All in the name of advocating and providing for my son’s needs, mostly medically. It began last night finding a very hard nodule on my son’s colostomy stoma. While it doesn’t seem to be causing him much issue, at least clinically it is bothersome that this suddenly appeared. There are a few indicators it is annoying him some. The big problem is whenever there seems to be anything to do with his colostomy it turns into a finger pointing, excuse making, pass the buck, frustrating time. (more…)

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Lost Art of Proactive

The world has changed much in the last fifteen years, but I did not think the word proactive would be considered such a taboo term. It apparently is NOT in many individuals vocabulary which translates into a nonexistent mindset as well. When did our world become so reactive versus this alternative? (more…)

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I posted two new articles today for you to read……….

Preceptor Fail is an account of how the nursing agency practically set our newest nurse, who is a new grad, for failure by not following through. It is certain to make you shake your head in amazement & disbelief.

My Son, My Hero is something I wrote while my son was less than 1 month old and still in the NICU.  He has continued to impress and inspire me as well as many others. It is amazing and touching to hear from people how much my son has changed their outlook on life and motivated them to accept more in their own lives.

Thanks for reading my point of view,

http://www.twitter.com/fatherpov

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Dear Nursing Agency,

In my eight months with you I have been told with authority on numerous occasions by several staff that you have been doing business for 25 years. Your staff has gone on to add that this amount of service must mean you know what you are doing. I find it amusing that each person I encounter and attempt to address issues with my son’s case almost verbatim utters this mantra as if it were printed on cue cards. My response too is always the same, a lot has changed & no longer exists in 25 years. Adapting is necessary, but apparently incomprehensible as a philosophy. However, I will concede that sticking to your initial principles is worthy. Living up to them, well now that is a different story. For a company that has had set standards in place and has boasted upon this to combat criticism for a quarter of a century you fall well short of meeting and demonstrating those. (more…)

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