Posts Tagged ‘emergency surgery’

One of the many anomalies my son was born with caused by his Fanconi Anemia was an imperforate anus. On November the 8th my son had surgery to reverse his colostomy. We were scheduled to be in the hospital four days. Well it is eleven days later and we have had many complications with this surgery.

The first stage was a PSARP or “Pull-thru” as it is called. This was done in June to create an opening and pull the rectum through (thus the surgery name). Dilations were the most difficult thing to do to our child to make the rectum muscles open and stregthen to create better continence chances. Once the healing process was complete a colostomy reversal could be done. My son has had this since he was less that 36 hours old. We were excited to do this as it was to create a better quality of life for him in the long run. That brings us to tonight.

His stomach has been very distended and he has had a mass around the surgical site. This was dismissed as an normal abnormality that resolves itself over time. They called it a saroma which is fluid build up around the tissue. It is typically reabsorbed by the body. In my son’s case it worsened. Then today high fevers began causing grave concern on my part. Cultures were done and we are awaiting preliminary results. The Bone Marrow Team is following this develop and reccommending the appropriate treatments. It is feared to be a central line infection. This evening the colorectal team assessed my son’s stomach and were concerned by the appearence of the mass they have so quickly dismissed through the past two weeks, despite our questions and voice of concern. It was so disturbing a CT scan was ordered immeadiately. They moved him straight from CT to the operating room at 11 pm on a Friday Night. Emergency surgery! The findings based on the CT scan is that the bowel is herniated and has pushed up so much that it was protruding outward and causing gas and fluid not to flow appropriately. The surgeons, the best in the world at this surgery in fact the creators and pioneers were uncertain, how long the surgery would take, what they would find and the final action until they opened him up. More than likely they would need to return the colostomy. The very thing we came here 11 days ago to get rid of and move forward. There are feelings of guilt that I know are unfounded. The waiting after such a long whirlwind day is intense. Especially anticipating the unknown outcome and not having any idea how long I must sit here and wait. I am blessed to have such great support from many people whom I have never met! Your support, thoughts, & prayers give me the strength to press on and feel strong! For that I thank you all.

Thanks for reading my point of view,


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