Feeds:
Posts
Comments

Posts Tagged ‘My Son’

Gingerbread Men Running

Much of my son’s life has been about taking three steps forward and then two steps back. Well, in a very fitting fashion, he took three steps forward today, but there will be no going back with this one! This morning he took his first unassisted steps and both of us were blessed to be able to witness the joyous occasion. Ironically, during speech therapy today he was standing at a bench just looking around while we were discussing exercises to work on. We were all watching him and he just got this gleam of confidence in his eyes when suddenly he let go of the bench and took a step, then another. We saw his eyes get wide and his smile from ear to ear as he took a third step before very gracefully falling. He was so proud. You could see it on his face. Of course we were too. We knew it was coming. He has been so motivated to do this.  A little later during occupational therapy he took off again! This time going six steps while very impressively navigating around an obstacle in his path. There is no doubt that he will be running around here very soon. Look out Gingerbread Man!!

I could not be more proud of him. Today highlights and personifies his will and determination to do more. He never gives up and rarely gets frustrated. As I’ve said time and again, it is inspiring, an honor to watch and be a part of everyday.

Thanks for reading my point of view,

http://www.twitter.com/fatherpov

Advertisements

Read Full Post »

I have come to realize that as a father to a complex medical needs child that my life is normal. Some that I say this to look at me as if I have three heads, but when you think about it, normal is different for each of us. It is relative to the lifestyle and routines we lead in our daily lives. I remember my son’s physical therapist asking me one time how my wife and I handled everything. My son was the most complex patient she had work with. I laughed as I shook my head in a positive nod and said, ” this is what I do. I have become accustom to this and the things we must do for him medically. When your child has a running nose you help them blow it, I suction my son’s trach tube. You worry about tripping over all the kids toys I am concerned with not tripping on his tubes and wires. You change a dirty diaper, I change a colostomy bag, to me that is all normal now.” I went on to also say, “If you were to ask me to watch a “normal” child my son’s age I bet by the end of the night I’d be screaming for my medically complex child back.” I don’t think I would even begin to know how to care for a child that is not like my son. Funny how that works out isn’t it?

(more…)

Read Full Post »

Being Chosen, My Honor

Having a medical complex child who has a life-threatening illness and struggles daily with pain, issues and challenges has without a doubt turned my life into a completely different direction. I have embraced the opportunity and tried to live up to the task. I have watched my son develop and overcome challenges that many said he would never reach. His spirit and courage, like most children who are chronically ill, is nothing short of inspiring […..]

Read the full article here.

Read Full Post »

I posted two new articles today for you to read……….

Preceptor Fail is an account of how the nursing agency practically set our newest nurse, who is a new grad, for failure by not following through. It is certain to make you shake your head in amazement & disbelief.

My Son, My Hero is something I wrote while my son was less than 1 month old and still in the NICU.  He has continued to impress and inspire me as well as many others. It is amazing and touching to hear from people how much my son has changed their outlook on life and motivated them to accept more in their own lives.

Thanks for reading my point of view,

http://www.twitter.com/fatherpov

Read Full Post »

%d bloggers like this: