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Posts Tagged ‘Quotes’

This week has been one of the most stressful I have experienced in quite awhile. There was one issue after another spanning the spectrum. I’m not going into details, but one particular issue stood out this week that made me stop for a moment to think. I’d like to begin with sharing this quote.

“Learning to live in
the present moment is
part of the path of joy.”
-Sarah Ban Breathnach

Something that I realized this week is that I try to approach each day with that quote in mind. Having a son with a life-threatening disease which many of it’s patients never make it to adulthood can certainly be overwhelming. You never know when things will take a turn for the worse and what could be your final day. We all live with that to some degree, but when there is a diagnosed cloud looming overhead it makes it seem more realistic. I think many that share terminal diagnosis and life-threatening diseases ignore that cloud. They fight through the pain, suffering and illness and inspire many along the way. While my son can not speak and communicate that to me directly, his actions clearly define this attitude. As a parent I have embraced that as well. I do not dwell on the fact that his life expectancy is potentially shorter. That doesn’t mean that I do not think about it from time to time. I may even shed a few tears over it during those moments. One thing my wife and I decided was we would embrace each day as it’s own and see tomorrow as something to look forward to rather than dread. We take the time to relish our time as a family. While my son has spent half his life in a hospital, we have had some of our fondest memories as a family there. This week I had to spell out the grim reality to get a medical provider to understand my point. They were neglecting to remember the fact that my son’s disease carries with it certain avoidances that have been documented with research to be particularly harmful and potentially hasten the onset of certain issues. While I understood the point the provider was trying to make in respect to the challenges this particular constraint placed, I was equally disturbed that they continued to press the issue as if I was being an overprotective and unreasonable parent. I felt as though they were attempting to sway my stance on their favor by asking me to compromise my values towards my son’s care. This should never happen, but it does when people do not take the time to remember or understand and be open-minded. Maybe by living in the present and embracing today rather than the potential we were misunderstood. The embodiment of this ideal is not meant to make it any less serious or to pretend it does not exist.  However, if I choose to take the time to expose you to the reality it is not appropriate to make me feel as though I am the one in the wrong. As I tell many of my critics, “walk a mile in my shoes. I bet you won’t make it that far.”

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Thanks for reading my point of view,

http://www.twitter.com/fatherpov

Vote4Hope.

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A Quote to Share

Read this quote and just felt that it connected with my situation and the drive my son shows me each and every day. My son is not different, it is just that everyone can not do what he does.

“We are all born with wonderful gifts. We use these gifts to express ourselves, to amuse, to strengthen, and to communicate. We begin as children to explore and develop our talents, often unaware that we are unique, that not everyone can do what we’re doing!”

-Lynn_Johnston

Thanks for reading my point of view,

http://www.twitter.com/fatherpov

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